Thursday, Jul 30, 2015, 5:23 PM MDT

This is the last photo we took of Mom before she moved to Chelsea Place Memory Care. She looked a lot different back then.

Family Mom

Wednesday, Apr 27, 2016, 2:00 PM MDT

C.A.R.E. Conference: April 27, 2016

Admission Weight: 169
3 months later it was 176
Currently at 168

Calcium, Ocuvite, and Tylenol.

Chelsea Place

Friday, Jun 10, 2016, 5:29 PM MDT

Aurora Hospital Discharge

June 10, 2016

Wednesday, Jul 27, 2016, 10:00 AM MDT

C.A.R.E. Conference: July 27, 2016

Attending: Kathy Stewart, Jenny Seaman, Cecille Partee
Weight: 164 lbs

Chelsea Place

Tuesday, Aug 2, 2016, 9:25 AM MDT

Chelsea Place, Aurora, Colorado, United States
77°F Mostly Cloudy

Visiting on the last day of Summer vacation

Saturday, Aug 6, 2016, 3:35 PM MDT

13947–14069 E Quincy Ave, Aurora, CO, United States
73°F Mostly Cloudy

Dairy Queen with Bob and Mom

Saturday, Aug 20, 2016, 3:38 PM MDT

Chelsea Place, Aurora, Colorado, United States
73°F Mostly Sunny

Glasses are missing

Lines of the day: "You're a good son" and "I have three sons, and you're one of the best."

Family Mom

Tuesday, Aug 23, 2016, 6:40 PM MDT

Mom’s Glasses still M.I.A.

Made an appointment for this Saturday to get her an eye exam and TWO new pairs of glasses.

Saturday, Aug 27, 2016, 12:40 PM MDT

Look Optical, Aurora, CO, United States
73°F Mostly Sunny

Getting Mom New Glasses

They found Mom's glasses Saturday morning. A resident had 13 pairs in his room! We still ordered two new pairs of frames, so Mom will now have THREE glasses on hand.

Sunday, Sep 4, 2016, 9:26 AM MDT

Chelsea Place, Aurora, Colorado, United States
68°F Mostly Sunny

Mom's New Glasses by Michael Kors

Mom

Sunday, Sep 11, 2016, 10:44 AM MDT

East Bank Shopping Center, Aurora, CO, United States
81°F Mostly Cloudy

Weekly Sunday Drive with Mom

Her hearing aid is now missing. Hopefully they will turn up just like her glasses did. When we got back she had to go to the bathroom three times in less than 10 minutes. Not sure what's going on with that.

Mom

Sunday, Sep 25, 2016, 3:40 PM MDT

Dairy Queen, Greenwood Village, Colorado, United States
64°F Mostly Sunny

Sunday Visit with Mom

Freedom!

Busting out

On the way to Dairy Queen

Mmmm...chocolate sundae!

Saturday, Oct 8, 2016, 3:07 PM MDT

Dairy Queen, Aurora, CO, United States
72°F Mostly Cloudy

Saturday Visit with Mom

A trip to Dairy Queen is her favorite outing!

Mom

Sunday, Oct 23, 2016, 10:47 AM MDT

Chelsea Place, Aurora, Colorado, United States
52°F Partly Cloudy

Never too old to perform the civic duty of voting. When I asked why she didn't vote Trump, she said, "Because he's not a politician!"

Wednesday, Oct 26, 2016, 6:26 PM MDT

Home, Aurora, Colorado, United States
63°F Partly Cloudy

C.A.R.E. Conference: October 25, 2016

Attending: Cecille, Kathy, Kelly

Things are similar since last time we spoke. Same issues: sleeping, hydration, getting her to drink any fluids. Doesn't drink very much. Jenny focused on getting out more. She's not asking to go out as much as she used to. Smiling when she wakes up each day. Catholic group comes every Wed to socialize with residents. She participates in these groups and enjoys their visits.

More difficult time physically to move from her room to other parts of the building.
Is this her new baseline?
Physical Therapy 3x per week (strength, endurance, balance, using steps, sets.)
Occupational Therapy 2x per week (ADL work: toilet, bathing dressing herself)
Promote hydration during therapy sessions.

Decline: ability to ambulate (walking), endurance, activity tolerance, better on drives instead of getting out of the bus.

Not sure if hearing aid is making a difference.

Get her on Physician Housecall list to help clean the wax from her ears when they visit.

Connecting to her with food or touch. Getting close to using a wheelchair for mobility. Wheelchair helps with field trips and endurance. Not wanting to drink affects her hydration and endurance.

4 out of 10 as far s functioning

Friday, Oct 28, 2016, 2:06 PM MDT

Chelsea Place, Aurora, Colorado, United States
77°F Mostly Cloudy

Mark is in town to visit Mom. Also got to meet Lucy the dog.

Family Mom

Saturday, Oct 29, 2016, 5:47 PM MDT

Chelsea Place, Aurora, Colorado, United States
73°F Mostly Sunny

Looking at old photos from1970 during a visit with Mom.

Mom

Wednesday, Nov 23, 2016, 5:20 PM MST

Home, Aurora, Colorado, United States
37°F Mostly Clear

Thanksgiving with Mom, Watson, Bill, and Leah and Jake. Another successful holiday dinner!

Family Food

Sunday, Dec 4, 2016, 2:31 PM MST

Chelsea Place, Aurora, Colorado, United States
52°F Partly Cloudy

Visiting Mom, 10 days after she came to our house on Thanksgiving.

Mom

Sunday, Dec 11, 2016, 4:05 PM MST

Chelsea Place, Aurora, Colorado, United States
34°F Mostly Clear

Visiting Mom today for our weekly drive.

Also took a photo of Gene's room, one of my favorite residents!

Mom

Tuesday, Dec 13, 2016, 1:51 PM MST

Home, Aurora, Colorado, United States
43°F Mostly Cloudy

Heard from Occupational Therapist

Mom no longer needs to go to OT since she's moving more on her own, and is showing improvement. She walks around the building more often, and spends more time outside her room.

They told me she's now participating in more activities, and they are encouraging the staff to keep her involved after a meal, instead of going straight back to her room.

Good to hear that she's doing better.

Mom

Thursday, Dec 15, 2016, 12:17 PM MST

Home, Aurora, Colorado, United States
57°F Mostly Cloudy

Mom in the Hospital....again

Got a call from Chelsea Place this morning, at around 11:30 a.m. Apparently Mom was sitting in the common area, watching some elementary school kids perform, when she went into a “seizure” and slumped over in her chair and was unresponsive.

They said it might be because she was dehydrated. They sent her to the hospital as a precaution. This is the the third time this year that she’s had to go to the hospital for dehydration. Not sure what is causing these episodes, other than the fact that she doesn’t drink enough liquids

Gonna try to visit her in the hospital, or at least call them to find out how she’s doing.

Monday, Dec 19, 2016, 3:53 PM MST

The Medical Center of Aurora - Main Campus, Aurora, CO, United States
43°F Mostly Cloudy

Hospital Day 5:

Mom remains in the hospital, when I thought she'd be there less than two nights, like last time. They want to keep her there since she's getting a fever each night, and then it goes away. Might be a reaction to the antibiotics.

It's been hard to watch mom in the hospital like this, especially since it's around the same time Dad died in 2010, December 16th. The more time she spends laying in a hospital bed, the more she regresses in terms of mobility and strength. And watching her in a hospital gown, with her Depends drooping and soiled, barely able to walk to the bathroom, makes it a bit hard to take.

Leah and Jona are having dinner out, Jake is a Brynn's house, and I'm here alone, which is what I need right now.

Bob arrives a week from tomorrow for two nights, and Mario comes out the 2nd day Bob's here, but is staying for 6 nights.

Mom

Thursday, Dec 29, 2016, 1:08 PM MST

14055 E Quincy Ave, Aurora, CO, United States
45°F Clear

Mom Update: Hospice Begins

Didn't realize how long it's been since writing last. Mom left the hospital after spending FIVE days there, and she hasn't really recovered. Her mobility is now gone, and she is having a hard time swallowing solid foods.

I'm getting ahead of myself. Let me back up to Mom getting out of the hospital just before Christmas. She returned to Chelsea Place, and started Physical and Occupational therapy again. Only this time, she isn't making any progress.

Bob and Mario were here Dec. 27-Jan. 5, and they visited Mom several times. Bob didn't think there was much difference from when he last saw her in September. I disagree. I have noticed a change: she talks less, moves slowly, and have noticed the eating difficulties, too. She often coughs and seems like she's gagging.

On Mario's last visit to Omi, he said to her, "Bye, Omi...love you!" To which she responded, "Love me? You don't even know me," which is a rather weird, lucid, and mean thing to say. I have not been able to visit Mom for over two weeks now, since there's been a stomach virus going around at Chelsea Place, and they encouraged family members to stay away for a few days.

On Monday, MLK Day, January 16th, Leah, Jake, and I went skiing at Copper Mountain. On the way home, I got a call from Kathy Stewart, the RN at Chelsea Place. Once we got home, Kathy told me about Mom's decline, that she's not as mobile, and is having a hard time swallowing solid foods. Kathy said this is part of the "disease" where the body starts shutting down. She suggested changing her care to hospice, where she will get more personalized care, upgraded bed and wheelchair, and more frequent nurse visits. Kathy said that hospice care can last over a year, and several residents at Chelsea Place have been in hospice care for a long time, too.

So this type of hospice doesn't feel like it did with Dad, where he went into hospice care and passed away less than a week later. This feels more like a logical next step in Mom's care as we prepare for the inevitable. I'm just not sure how long that will be. I think the change in her diet from solid to purée foods might really impact her quality of life, since eating is one of the only things I know she still enjoys. Mark is coming out Feb. 3-5 while he's here in Hollywood for Sherlock Gnome. His visit could very well be the last time he sees her.

I'm meeting with the hospice care company tomorrow to sign papers and begin the process of upgrading her care. I've let family members know the situation, thanks to Facebook Messenger. Uncle Manny passed away a few months ago, and Aunt Jean died in 2016 as well. The old Solomons are slowly fading away.

Family Photo at Chelsea Place

Facebook Family Mom

Thursday, Jan 19, 2017, 4:20 PM MST

Chelsea Place, Aurora, Colorado, United States
50°F Mostly Sunny

Hospice Meeting

Encompass Hospice Care (formerly Honor Hospice)

4:15 pm at Chelsea Place

Maggie Hapeman and Lisa Hollerbach
Chaplain Joe Burns
CNAs: Kim, Molly Wenz
Molly is the one who will buy bathing and hygiene supplies, shower, do her hair

Visit every other week. Hour long visits at a time. Lisa helped with a coloring activity last time she was here. Provide companionship for residents. Help support quality of life.

Maggie visits twice a week. Lisa is Social Worker and Maggie is the nurse.
Both can answer questions and support the family.

162 lbs in December
148 lbs in January
Started puree diet last week. She’s eating 75% of the puree foods.

Eliminate meds that aren’t necessary:
Keep Metamucil, Thyroid, Aspirin, and Tylenol

Have hospice comfort kit on hand which includes liquid morphine for pain, lorazepam for anxiety, Tylenol suppository, Ducolax for constipation

Completely incontinent now. Swelling in hands and left foot.
No more walker. Ordered new wheelchair with gel cushion and hospital and air mattress.

Hospice eliminates the need to go to the hospital
Everything is covered under hospice benefit
Covers comfort medication, too

Think of hospice as added support, not end of life
90 days of starting with new patient, and checking on progress and changes. Determine any changes in care. Then every 60 days to make sure how patients are doing.

Sunday, Jan 22, 2017, 5:43 PM MST

Chelsea Place, Aurora, Colorado, United States
37°F Mostly Cloudy

Visiting Mom on a Sunday

This is my first visit since Mom began hospice care. She's barely able to stand up on her own but she still made it to the car with help. Went for a drive over Cherry Creek Damn and stopped at Wendy's drive thru for vanilla frosties.

Mom

Wednesday, Jan 25, 2017, 12:56 PM MST

Home, Aurora, Colorado, United States
28°F Partly Cloudy

C.A.R.E. Conference: January 25, 2017

Joe: Chaplain
Lisa: Encompass Hospice
Kathy Stewart: Clinical Director
Erica: Nurse

Weight: 148 lbs 1/19/17
She's currently dancing on the West Side and reading the paper
Can do word puzzles with staff
Reads with staff members

What is her current mental and physical status?
Staff says that when she sleeps at night, she "digs" in her behind, thinking she is having an incontinent episode. Amazon sells a special garment for night time sleeping. She can use the toilet half the time. Uses less words than she did before. Not walking anymore. More engaged since this decline, since she can't go back to her room like before. She is drinking better with a straw. Requests to lay down after lunch. Respect Mom's schedule and need for rest. Becoming more withdrawn.

How has she handled her new purée diet?
She is eating better instead of "pocketing" food in cheeks. Eating 50-75% of meals.

What has changed in her health and attitude since beginning hospice care?
Joe: had one visit with her. Hearing is a communication issue. Getting acquainted. She said, "I'm smiling for you" which helps. Sees her every other week for about an hour at a time.

What is her mobility status?
Wheelchair exclusively. Has a hard time standing up on her own. Getting out of the car is a challenge. Can still go on drives, just get help from staff with transitions.

How often does she communicate? And how does she usually communicate with others?
1-4 words, about half the time. She'll say to talk in her good ear. When she does communicate, it's appropriate. She will initiate communication when she needs something. She is definitely talking less since her hospital in December.

What would you say is her overall attitude? Does she know that her care has changed to hospice?
She's not aware she's in hospice. She enjoys people and socialization.

Does she need new clothes? What size?
Clothing seems okay. Maybe new pants.

How often does she go on outings?
Changed a little since her decline. Now that she's in a new baseline, she can go on more outings. Not as many outings with stomach virus and weather being colder.

Is there a maximum that Medicare will pay for someone to remain in hospice?
No, as long as she is clinically declined. As long as she's appropriate for hospice care, she will continue to receive services.

She's at a 6 on a scale of 1-10 with 10 being days left and 1 being no hospice

Saturday, Feb 4, 2017, 12:09 PM MST

Chelsea Place, Aurora, Colorado, United States
57°F Mostly Sunny

Visiting Mom with Murray and Nathaniel

Family Mom

Saturday, Feb 4, 2017, 12:09 PM MST

14055 E Quincy Ave, Aurora, CO, United States
57°F Mostly Sunny

Visiting Mom with Mark, Murray, and Nathaniel

Then it was off to meet Leah, Jake, and Brynn at Bent Fork for lunch.

Family Mom

Saturday, Feb 18, 2017, 4:32 PM MST

Home, Aurora, Colorado, United States
63°F Mostly Cloudy

Face Swapping during my visit to Mom

Chelsea Place Mom

Tuesday, Feb 21, 2017, 9:53 PM MST

Home, Aurora, Colorado, United States
55°F Mostly Cloudy

Mom Fell Out of Bed This Morning

Got a call at 5:46 am from Chelsea Place, saying Mom fell out of bed. She is fine, and doesn't have any bruises. It was just protocol to call family members any time an "accident" occurs at the facility.

I then got a call from the Hospice Company this evening, saying they are ordering a new bed with "wings" so she can't accidentally roll out of bed anymore, along with a pad to put by the bed just in case she does fall out of bed.

It's good to know that Mom's getting good care, and they are taking precautions to avoid further accidents.

Chelsea Place Mom

Monday, Feb 27, 2017, 4:37 PM MST

Chelsea Place, Aurora, Colorado, United States
48°F Mostly Cloudy

Switching out mom's crooked glasses and paying a brief visit

Mom

Sunday, Mar 12, 2017, 11:13 AM MDT

Chelsea Place, Aurora, Colorado, United States
55°F Mostly Cloudy

Sunday Drive with Mom

She was looking good today. Alert, clean, and ready to go out. We took a longer drive today, almost 45 minutes. Drove over the Dam Road, then to I-25 North to Downing and drove around Washington Park.

Mom

Thursday, Mar 30, 2017, 2:33 PM MDT

Chelsea Place, Aurora, Colorado, United States
63°F Mostly Cloudy

Celebrating Mom's 90th Birthday

Mom

Sunday, Apr 9, 2017, 11:01 AM MDT

Chelsea Place, Aurora, Colorado, United States
55°F Partly Cloudy

Sunday Drive with Mom

Mom

Saturday, Apr 22, 2017, 11:35 AM MDT

Chelsea Place, Aurora, Colorado, United States
41°F Cloudy

Saturday Drive with Mom

Taking Mom for a ride in my NEW car.
Best lines of the day:

Mom

Friday, Apr 28, 2017, 4:26 PM MDT

Chelsea Place, Aurora, Colorado, United States
34°F Light Snow

C.A.R.E. Conference: April 28, 2017

Joe: Chaplain
Lisa: Encompass Hospice
Maggie: Nurse
Rachel: Social Work Intern

Recertification Period is coming up (90 days)
Joe: trying to get her to open up about religious thinking, and she does not respond or shuts it down. Another chaplain tried talking to her, and she was not into talking about her spirituality. Might be trying to cover up her shortcomings. She tends to fidget and wants to move. Hasn't seen much of a decline. Not a lot of give and take in conversations.

How is her mobility?
She goes to exercise classes. Moves herself in her wheelchair more often.

What works best to communicate with her?
She engages more in conversations. Sense of humor showing through. Take her to her room or quiet room. Loves getting her nails painted and reading People Magazine. Look at photos in her room. It's clear how much family means to her. She now answers questions. Sometimes she doesn't always hear and gives wrong answers.

How often does she go on outings?
She does occasionally, depending on the weather. Participates passively (or not) during activities.

Is she getting better, worse, or staying the same?
Medically, she's doing well. Eats 75% - 80% of her meals. Weight is stable. 158 lbs

How has she changed since being in Hospice Care​?
She's getting better. On the verge of being staffed out of hospice. She can go in and out of hospice based on her condition. She might be off hospice before July 18th.
Check how she does through May, and if she's stable, they will "discharge" her from hospice by end of May. Her bed and wheelchair will be going away, as will "scheduled" visits from nurse, social worker, and chaplain. However, they will still see her when they visit and will be sure to engage her in conversations.

How would you describe her overall attitude and well being, on a scale of 1-10? (1 being healthy and 10 in poor health)
3 or 4. She definitely has more than 6 months. She's stable and loving her life.

Chelsea Place Mom

Sunday, May 14, 2017, 12:32 PM MDT

Home, Aurora, Colorado, United States
64°F Mostly Sunny

Mother's Day 2017

Her glasses were missing...again. We had to stop by our house so I could give her one of the two spares we have at home.

Mom

Saturday, May 20, 2017, 3:24 PM MDT

Chelsea Place, Aurora, Colorado, United States
55°F Mostly Cloudy

Saturday Drive with Mom

She's doing well. Signed the papers to discharge her from hospice, and also signed papers to start back with PT and OT. Still missing one pair of glasses.

Chelsea Place Mom

Saturday, May 27, 2017, 9:48 AM MDT

S Peoria St, Aurora, CO, United States
54°F Mostly Cloudy

Taking Mom for a drive over Memorial Day weekend

Mom

Tuesday, May 30, 2017, 9:54 AM MDT

Chelsea Place, Aurora, Colorado, United States
63°F Mostly Sunny

The Saga of Mom's New Shoes

So I get a call from the Legacy Physical Therapy, the company that works with the residents at Chelsea Place, recommending that I get Mom a pair of sneakers to wear during her physical therapy sessions. On Saturday, I went to DSW Shoes and got her a slip-on pair of Skechers. Those were too tight. Went back to DSW the next day and got a pair of laced shoes, and those were too tight as well.

Today, seeing that the 2nd pair of shoes don't fit either, I picked up Jake before driving mom back to Chelsea Place. Jake and I then drove to a speciality shoe store called Dardano's and bought a 4E Wide Pair of New Balance sneakers for $160!! A lot more than the first two pairs by almost TRIPLE, but at least these fit her and should be the last pair of sneakers she'll ever wear....unless one of the residents swipes them, like they did her glasses (which were found and returned on Sunday).

Enjoy these photos of Mom's fancy new "kicks".

Chelsea Place

Sunday, Jun 4, 2017, 12:55 PM MDT

Chelsea Place, Aurora, Colorado, United States
77°F Mostly Sunny

Taking Mom for Our Usual Sunday Drive

Chelsea Place Mom

Sunday, Jun 25, 2017, 11:49 AM MDT

Chelsea Place, Aurora, Colorado, United States
63°F Partly Cloudy

Sunday Drive with Mom

It’s been a few weeks since I saw Mom, and she’s looking good! She is more mobile than before, seemed more alert, and was in good spirits. We did our usual drive around Denver, past Washington Park, and over the Cherry Creek Dam road.

Mom

Sunday, Jul 2, 2017, 10:37 AM MDT

Chelsea Place, Aurora, Colorado, United States
82°F Mostly Sunny

Sunday Drive with Mom

She's doing well. Doesn't talk much, still thinks it's her first time riding in my new car, but she seems on good overall spirits.

Chelsea Place Mom

Saturday, Jul 15, 2017, 6:21 PM MDT

1491 S Havana St, Aurora, CO, United States
63°F Mostly Cloudy

Took Mom for a drive for the first time in two weeks

C.A.R.E. conference is on Wednesday, July 19th

Mom

Sunday, Jul 16, 2017, 10:06 PM MDT

Last Photo in Boulder: July 2015

This is the last photo we took in the Boulder condo at Remington Post before moving Mom to Chelsea Place Memory Care.

Chelsea Place Family Mark Solomon Mom

Wednesday, Jul 19, 2017, 9:30 AM MDT

Chelsea Place, Aurora, Colorado, United States
81°F Clear

C.A.R.E. Conference: July 19, 2017

David Hoppe: Director
Kathy Stewart: Nurse
Jenni Dill: Activities Director

Medications:

Doing well clinically, very stable, weight: 151 lbs

Could use more bras. Ask caregivers which ones to get.

How is her mobility?
Mobility is probably the best improvement she's made. The greater the mobility, the better quality of life. She's wearing her sneakers more often.

What is her diet like? Is she eating solid or puréed foods?
Purée diet continues, eats everything, puréed desserts

How does she communicate, and with who?
At a different place, cognitively. A little bit of decline. Does more activities. Talking less.

What is she working on in PT and OT?
Walking and transfers. Doing really well. Sometimes can be found in other people's beds trying to sleep. Does better on outings.

How often does she sleep?
Naps throughout the day, after meals. Seen in common area a little more.

What has improved since last meeting? What has declined?
Physically doing better, mood is better, engagement is better, eating is more successful. Communication ability declining. Does not self-initiate getting involved in meals and activities, needs a cue.

Can we make recommendations for her hair style?
It doesn't look like how she's worn her hair her whole life. She's always had a short cut with bangs. See photo:

Friday, Jul 28, 2017, 7:54 AM MDT

Home, Aurora, Colorado, United States
63°F Mostly Sunny

Two Years Ago, Mom's last day of Independent living ended: https://www.facebook.com/mole555/posts/10207065518654602:1

Chelsea Place Mark Solomon Mom

Saturday, Jul 29, 2017, 11:19 AM MDT

Chelsea Place, Aurora, Colorado, United States
72°F Mostly Cloudy

Taking Mom on a Drive Around Town

It was TWO years ago today that we moved Mom into Chelsea Place.
She's not talking as much as she used to.
Memorable quotes from today:

Chelsea Place Mom

Sunday, Aug 13, 2017, 10:55 AM MDT

Chelsea Place, Aurora, Colorado, United States
81°F Mostly Sunny

Saw Mom today. She's doing well.

She said I'm a good son. When I asked her "Why do you say that?" she replied, "Because you picked me up and took me out."
Toni said how much everyone at Chelsea Place loves Eleonore! She's easy to take care of, and appreciates everything people there are doing for her.

Mom

Sunday, Aug 27, 2017, 10:57 AM MDT

Chelsea Place, Aurora, Colorado, United States
72°F Partly Cloudy

Seeing Mom for the First Time in Two Weeks

She's not talking as much these days. However, she is wearing her fancy new sneakers and is able to get in and out of the car okay.

Chelsea Place Mom

Sunday, Sep 10, 2017, 12:58 PM MDT

Chelsea Place, Aurora, Colorado, United States
81°F Mostly Cloudy

Bob and Gai are Visiting Mom at Chelsea Place

Chelsea Place Mom

Thursday, Sep 21, 2017, 11:03 AM MDT

Chelsea Place, Aurora, Colorado, United States
79°F Mostly Sunny

Rosh Hashana Drive with Mom

Came to pick up Mom and noticed her photo is featured in the main lobby.

Chelsea Place Mom

Sunday, Oct 22, 2017, 5:10 PM MDT

Chelsea Place, Aurora, Colorado, United States
63°F Mostly Cloudy

Lorna and Murray Visiting Mom

Looking at old photos with Omi

Thursday, Oct 26, 2017, 10:02 AM MDT

Chelsea Place, Aurora, Colorado, United States
48°F Mostly Cloudy

C.A.R.E. Conference: October 26, 2017

Kathy Stewdart: Nurse
Jeanni Dill: Activities Director
Susie: Business Offfice Director

Medications: aspirin (81mg), synthroid (50micrograms), metamucil (2 capsules), calmoseptine ointment for rash
Doing well clinically, very stable, weight: 149 lbs
Blood pressure a little high: 150/90 used to be 120-130/80.
Got a call into Physician Housecalls for a checkup

How is her mobility?
Not walking as much as she used to. Not walking much at all. Hopefully PT will help. Takes longer to process the steps necessary to accomplish a transfer to and from transportation.

What is her diet like?
Is she eating solid or puréed foods? Still on puréed foods, and eats all of her food every time. Appetite is most healthy part about her. Difficulty to get her to drink fluids.

How does she communicate, and with who?
She’s talking a lot less lately. Communicates with smiles and touch, mostly with care staff, not much interaction with residents. She looks to others when there’s a lot going on, or a lot to process.

What is she working on in PT and OT? Why does she go in and out of qualifying for PT?
Working with PT again, trying to get back to walking. Goes 3 times a week for 30-60 minutes.

How often does she sleep?
Sleeping a little less than last time. Due in part to dependence on staff to get to her bed. Sleeps through the night.

What has improved since last meeting? What has declined?
Hair has improved, it’s looking better. Cognitive decline, mostly with processing.

What can we expect over the course of the next year?
Difficulty swallowing and eating. Amount of time it takes to process directions is declining.

Mom

Saturday, Nov 4, 2017, 10:45 AM MDT

Chelsea Place, Aurora, CO, United States
61°F Partly Cloudy

Took Mom for a Drive

She’s not talking as much as she used to. Had a harder time getting her into the car, too. Mobility slowing down.

Chelsea Place Mom

Sunday, Nov 19, 2017, 10:44 AM MST

Chelsea Place, Aurora, CO, United States
46°F Mostly Cloudy

Sunday Drive with Omi

She’s reading Zelda’s letter.

Chelsea Place Mom

Thursday, Nov 23, 2017, 10:29 AM MST

Chelsea Place, Aurora, CO, United States
59°F Mostly Cloudy

Thanksgiving Drive with Mom

Sunday, Dec 10, 2017, 10:41 AM MST

Chelsea Place, Aurora, CO, United States
45°F Sunny

Driving Mom Around Cherry Creek State Park

Her photo was featured in the lobby when I arrived today. When she saw her photo she said, “I’ve seen better pictures of myself.”

Chelsea Place Mom

Sunday, Dec 31, 2017, 10:40 AM MST

Chelsea Place, Aurora, CO, United States
30°F Mostly Sunny

New Year’s Eve visit with Mom

She’s not talking as much as she used to. When I dropped her off back at Chelsea Place, Lucy the Dog was visiting residents.

Chelsea Place Mom

Sunday, Jan 14, 2018, 10:42 AM MST

Chelsea Place, Aurora, CO, United States
43°F Mostly Sunny

First Mom visit of 2018.

She was more lucid today, recognized me right away, and was eager to go for a ride around Cherry Creek State Park.

Her hair was looking good, and her chin whiskers had been cut. The photos were taken right after breakfast, getting her ready to go for a drive.

Mom

Thursday, Jan 25, 2018, 3:01 PM MST

Chelsea Place, Aurora, Colorado, United States
52°F Mostly Cloudy

C.A.R.E. Conference: January 25th, 2018

Dave Hoppe, Director
Melanie, Social Worker
Joe, Chaplain
Maggie, Hospice Nurse
Jennie Dill, Activities
Kathy Stewart, Nurse

How has her health changed since our last meeting?
Back on hospice
Speech is less, not talking as much
Has hard time finding her words
Leaning more in wheelchair,
More fatigued
2 Acute TIA episodes when she was unresponsive (Jan. 15th + Jan. 18th)
Eyes roll back, like a mini-stroke, loss of speech, no peripheral vision
Meds: thyroid, baby aspirin only
15 residents over 90 years old, she’s in the “90’s Club”
Is now in a high-back wheelchair and has a hospital bed in her room

How has her mobility changed? Can she still get in and out of my car?
Now a 2-person transfer
Need help with toilet and shower and all ADLs

How often does Encompass Hospice see her? What do you notice about her health?
Hospice comfort kit has been ordered just in case
Terminal agitation happens near end of life

How does she communicate? And who does she communicate with mostly?
She sits in the lounge, leaning to one side, and they just hold her hand.
Non-verbal, seems comfortable

Does she still go on outings? How often?
Always ready to go out on a bus ride
Weather is affecting frequency of outings. Hope to change to more often in Spring

How have her sleeping habits changed?
16 - 18 hours a day

What should we expect to happen over the next 3-6 months?
Still eating well on puree diet
Steady decline. Shared document “As Our Bodies Die...”

Do you have end-of-life instructions for donating her body?
Yes, they have CU Medical contact info for removal and transport to CU Boulder

Siblings-
Mom does not have a history of atrial fibrillation, but ,interestingly, Mark and I do.
Make sure they check her blood oxygenation level and give her oxygen for comfort if below a certain level. The hospice nurse will know.
Stop all non-essential medications if not already done.
Also, make sure she is sitting upright to eat if she is prone to aspiration.
Keep her comfy-show her old photos-play some classical music through headphones.

Chelsea Place Hospice Mom

Sunday, Jan 28, 2018, 9:39 AM MST

Chelsea Place, Aurora, Colorado, United States
37°F Partly Cloudy

January 28, 2018

Visiting Mom. She recognized most people in the photo album. I was writing down questions for her to answer. Her mind is still in good shape!

Chelsea Place Mom

Sunday, Feb 11, 2018, 9:36 AM MST

Chelsea Place, Aurora, Colorado, United States
27°F Mostly Sunny

Visit with Mom, looking at photos from 1996-1999

Chelsea Place Mom

Saturday, Mar 3, 2018, 11:23 AM MST

Chelsea Place, Aurora, CO, United States
63°F Mostly Sunny

Mark’s in Town to Visit Mom

Chelsea Place Mom

Sunday, Mar 4, 2018, 11:34 AM MST

Chelsea Place, Aurora, Colorado, United States
61°F Mostly Sunny

One last visit with Mom before Mark has to leave

Sunday, Mar 18, 2018, 10:57 AM MDT

Home, Aurora, Colorado, United States
43°F Partly Cloudy

Visited Mom Today for the 1st time in 2 Weeks

Looked at old photos. She’s not talking much these days. She’s also not asking to go OUT, which is a sign she’s not restless. More like forgetting that she wants a change of scenery.

Sunday, Mar 25, 2018, 9:18 AM MDT

Chelsea Place, Aurora, CO, United States
45°F Mostly Sunny

Visiting Mom today, going through photos from 1968-69

Sunday, Apr 1, 2018, 9:55 AM MDT

Chelsea Place, Aurora, Colorado, United States
30°F Partly Cloudy

Visiting Mom on Easter Sunday

Her birthday flowers look beautiful!

Chelsea Place Mom

Sunday, Apr 15, 2018, 9:51 AM MDT

Chelsea Place, Aurora, CO, United States
43°F Mostly Sunny

Visiting Mom on a Sunday

Brought photos from 1961-1963 and she can still remember names of people I didn’t even know, like Evie from Berk St. Her mind is still pretty sharp!
Today she was a bit more restless, saying, “Are you taking me out? I need to change my surroundings.”

Chelsea Place Mom

Saturday, Apr 28, 2018, 9:58 AM MDT

Chelsea Place, Aurora, CO, United States
61°F Mostly Sunny

Visiting Mom on Saturday

Visited mom today. I missed visiting last week. She enjoys looking at photos from the past. Talked to the Hospice Caregiver on Thursday, trying to get an update. They said she’s almost exclusively non-verbal now. She also needs two-person assist when getting out of her wheelchair, or when getting in/out of bed. She’s eating about 75% of her purée food diet, and sleeps about 16 hours a day.

She talks a little bit when I visit, but she’s limited to 1-2 word answers. I bring my iPad and write down questions and comments in LARGE font size, and she responds half the time. The other half she just looks at me, trying to figure out when I’m saying. Overall, hospice considers her condition “stable” so I guess that’s good news.

Chelsea Place Mom

Sunday, May 20, 2018, 9:22 AM MDT

Chelsea Place, Aurora, CO, United States
46°F Cloudy

Sunday with Mom

Chelsea Place Mom

Wednesday, May 30, 2018, 12:00 PM MDT

Home, Aurora, Colorado, United States
73°F Mostly Sunny

Tried Visiting Mom: in the shower

Stopped by Chelsea Place to see mom, and she was nowhere to be found. Her room door was locked, and the hair salon was open, but she wasn’t there, either. Found out she was getting showered.

Dropped off her monthly rent: $5963.00

Sunday, Jun 3, 2018, 9:02 AM MDT

Chelsea Place, Aurora, Colorado, United States
59°F Mostly Cloudy

Visiting Mom on a Sunday

Stopping by for a visit before Jake and I leave later today to Cedar Point, Ohio.

Mom did not have her glasses, and I noticed she has a black and blue mark around her right eye. She told me “I fell” but no one notified me, so I’m not sure when this happened.

In the meantime, she’s giving me the “Stink Eye” when I take her picture.

Chelsea Place Mom

Thursday, Jun 7, 2018, 9:32 AM MDT

Chelsea Place, Aurora, CO, United States
72°F Mostly Cloudy

Dropping off Mom’s fixed glasses

First day back from Cedar Point vacation, and got her broken glasses fixed. Also brought over a 2nd pair as a backup, so hopefully she can at least be able to see again. She’s not talking much today.

Chelsea Place Mom

Thursday, Jun 14, 2018, 9:18 AM MDT

Chelsea Place, Aurora, CO, United States
81°F Mostly Cloudy

Mom’s Got a New Wheelchair

On my visit last week, I talked with the hospice nurse, who said she’s going to order Mom a new wheelchair, since she is leaning more often now, and this new chair will keep her upright better. This chair has “bumpers” on each side to keep her sitting upright. She’s still not eating as much as she used to. Doing okay, though.

I stopped by on my bike today at 9:20 am.

Chelsea Place Mom

Saturday, Jun 30, 2018, 9:56 AM MDT

Chelsea Place, Aurora, Colorado, United States
63°F Mostly Sunny

Looking at old photos with Mom. She isn’t talking much. She can still read when a type out questions on my iPad. I wrote her a question: “What makes you happy?” And her reply was, “Your visit,” which was cute.

Chelsea Place

Sunday, Jul 8, 2018, 9:55 AM MDT

Chelsea Place, Aurora, CO, United States
77°F Mostly Sunny

Visiting Mom and looking at photos

1976-1979

Chelsea Place Mom

Saturday, Jul 14, 2018, 9:53 AM MDT

Chelsea Place, Aurora, Colorado, United States
77°F Mostly Sunny

Bob and Gai are in town to visit Mom

Looking at an album that Olaf gave to Bob when he was in Germany. Lots of old photos of our grandfather, Josef, in his military uniform.

Saturday, Jul 21, 2018, 9:44 AM MDT

Chelsea Place, Aurora, CO, United States
79°F Mostly Sunny

Visiting Mom on a Saturday

Photos from1968

Friday, Aug 3, 2018, 10:02 AM MDT

Chelsea Place, Aurora, CO, United States
73°F Mostly Cloudy

C.A.R.E. Conference: August 3rd, 2018

Jennie Dill, Activities
Kathy Stewart, Nurse

This is considered her “annual” CARE Conference.

**General Health: **
3 years at Chelsea Place, she is the 3rd longest resident

Doing okay. Seems content. Does not talk to anyone. Smiles and responds when people talk to her. On purée diet, still coughing from it, though. Aspiration is the biggest concern since she coughs on modified diet. Slowly losing some weight, not concerning. 156 lbs

Considered in “end stage” on her dementia disease progression. Hospice is still appropriate. Becoming more rigid in her general extremities. Mood wise, appears happy.

Jenny does more “sensory needs” and helps her get around and in the courtyard.

How has her health changed since our last meeting?
Medication list: aspirin, Levothyroxine, Metamucil (as needed)

How has her mobility changed?
No longer mobile, needs two person assist.

How often does Encompass Hospice see her?
What do you notice about her health?
Nurse: once a week and others “as needed”. They are available as needed.

How does she communicate? And who does she communicate with mostly?
Does not communicate verbally

Does she still go on outings? How often?
She does. Trying to do more. Try not to take her out when it’s hot. She “withers” .

How have her sleeping habits changed?
Sleeps more recently, around 16 hours. Sleeps in common area more often. Takes naps in her room

What should we expect to happen over the next 3-6 months?
Continued slow steady decline. Difficulty feeding herself. With history of mini strokes and aspiration episodes, there could a sudden event.

Do you have end-of-life instructions for donating her body?
Yes

CARE Conference  Mom

Sunday, Aug 5, 2018, 9:53 AM MDT

Chelsea Place, Aurora, CO, United States
66°F Mostly Sunny

Visiting Mom on a Sunday

This is my last day of vacation before returning to work on Monday. Mom keeps picking up her ‘sippy cup’ but doesn’t drink from it. Must be a nervous habit.

Looking at photos from 1981-1983

Sunday, Aug 12, 2018, 10:14 AM MDT

Chelsea Place, Aurora, CO, United States
75°F Mostly Sunny

Visiting Mom on a Sunday

She was asleep when I arrived, and is falling asleep while looking at photos.

Chelsea Place Mom

Sunday, Aug 19, 2018, 10:22 AM MDT

Chelsea Place, Aurora, CO, United States
59°F Mostly Cloudy

Visiting Mom and FB Messenger Video Chat with the Brothers

Mom

Sunday, Aug 26, 2018, 9:59 AM MDT

Chelsea Place, Aurora, CO, United States
79°F Mostly Sunny

Visiting mom on a Sunday.

Today I brought the old puppets from Windale Avenue, and she immediately lit up and began naming each one: Princess, Casper, Policeman, Devil, Skeleton, Wizard, and Witch. Impressive! This was the first time she’s talked in three weeks during my weekly visits.

Also brought a box of photos, many of which I hadn’t seen before. There were some great old photos of her family. I also included a new sign in her room, making sure she gets 2-person assistance when getting in and out of bed and her wheelchair.

Mom

Monday, Sep 3, 2018, 9:38 AM MDT

Chelsea Place, Aurora, Colorado, United States
66°F Cloudy

Visiting Mom on Labor Day

Found some old “inappropriate“ photos from Dad’s Army days.
Mom’s blood pressure has been high lately, so they are going to talk to the hospice nurse to see what’s going on.

Chelsea Place Mom

Sunday, Sep 23, 2018, 9:43 AM MDT

Chelsea Place, Aurora, Colorado, United States
70°F Partly Cloudy

Missed visiting Mom last week

She is feeling tired today

Chelsea Place Mom

Wednesday, Oct 3, 2018, 4:50 PM MDT

Home, Aurora, Colorado, United States
82°F Mostly Sunny

Maggie from Hospice Called Today

This is the message I sent to Mark and Bob on FB Messenger:

I just heard from Maggie, the hospice nurse at Chelsea Place. She said Mom has been losing a lot of weight over the past few weeks, down to 122 lbs from 156 at her CARE Conference in July. She's taking a lot longer to eat, and coughs often at meals. Maggies fears she may aspirate. She's also sleeping more, almost 18 hrs a day. As Maggie put it, "She seems like she's getting ready to go..." Not sure how much longer she has, we both felt that with the cooler months coming, it's more likely she won't make it to Spring, if not sooner. I will keep you posted if anything changes, and Maggie will do the same.

Chelsea Place Mom

Sunday, Oct 7, 2018, 9:46 AM MDT

Chelsea Place, Aurora, Colorado, United States
41°F Cloudy

Visiting Mom with Leah and Jake

Did a Video chat with Mark in Montreal. He’s there working on a movie about Harold Lloyd for the next 7 months.

Dear Family and Friends,

For those who don’t know, Eleonore has been in hospice care since January, diagnosed with late stage dementia. She has lost significant weight over the past three months, which concerns the hospice nurse. She’s been on a purée diet to help her swallow and digest food. Mom is sleeping almost 18 hours a day now. She doesn’t talk anymore, so when I visit we just look through old photos together, which often perks her up.

I wanted to send this journal entry to family and friends, and to keep Eleonore in your thoughts. I’ll let everyone know if anything changes in her condition.

Love,

Joel, Leah, and Jake

#ChelseaPlace #Mom
41°F Cloudy
Chelsea Place, Aurora, Colorado, United States

Chelsea Place ChelseaPlace Mom

Monday, Oct 8, 2018, 4:16 PM MDT

Home, Aurora, Colorado, United States
39°F Cloudy

Getting Ready for The End

Spent today at ISF at a Tech Meeting, and was on the phone with Chelsea Place to get mom’s paperwork in order. I couldn’t find the Donation Form from the Anatomical Board stating that Mom and Dad both wished to donate their bodies to CU Medical.

I had Dad’s notarized statement, but couldn’t find the official form from the Anatomical Board. I left early from our meeting to stop by Chelsea Place to pick up the form. It wasn’t dated and had Dad’s handwriting in most sections. All the contact information was incorrect, too. I wound up filling out an updated Donation Form and am sending it all back to the Anatomical Board.

Spoke with Cathy Stewart, the head nurse. She said mom is struggling more and more with aspirating while she’s eating. It’s getting harder for her to swallow, and food is getting into her lungs. She said this usually brings on pneumonia and a fever, and then she won’t be able to eat anymore. Or she make have another stroke. It’s hard to know what is going to happen, but it’s becoming more clear that something is going to happen sooner rather than later.

I’m not sure what to feel. I don’t want her to suffer, and hope that I can be there when she goes. It’s hard to know whether this is going to be a slow decline or if something drastic might happen when she’s eating.

Chelsea Place Mom

Saturday, Oct 13, 2018, 9:50 AM MDT

Chelsea Place, Aurora, Colorado, United States
52°F Mostly Sunny

Via Mom on a Saturday

She looks really frail and skinny. She’s also shaking more often. We looked at old photos. And I told her that we all LOVE her.

Chelsea Place Mom

Monday, Oct 15, 2018, 2:43 PM MDT

Copper Mountain Resort, Frisco, CO, United States
23°F Haze

Maggie from Hospice called: Mom is barely eating now

Maggie is now visiting Mom 7 days a week as she continues to get weaker and is now eating hardly any food. She can’t keep it down since she chokes while swallowing, causing “aspiration” as good gets into her lungs.

Even though we are vacationing in Copper Mtn for the next two days, Maggie said not to worry. Nothing “dire” is happening, but it also looks like Mom is getting closer to the end.

Mom

Tuesday, Oct 16, 2018, 4:44 PM MDT

Copper Mountain Resort, Frisco, CO, United States
37°F Sunny

Another Call from Maggie

This time it was while we were eating lunch at Sweet Basil in Vail Village. She’s no longer eating or drinking, and as Maggie put it, “She’s only got a few days left.”
She’s sleeping almost 24 hours a day now, and they have staff moving her around in her bed just to keep the blood circulating.
Not sure how much longer Mom is going to be around. I’m already thinking about taking “bereavement” leave from work, how many days I’ll need, making sub plans, letting people know what’s going on. This list goes on and on.
I will stop by on Wednesday when we get back into Denver, and hopefully get a chance to see Mom and talk to Maggie and Toni at Chelsea Place.

Mom

Wednesday, Oct 17, 2018, 11:21 AM MDT

14055 E Quincy Ave, Aurora, CO, United States
50°F Mostly Cloudy

Here with Mom

Did a FaceTime with Mark and Bob so they could send their love. It won’t be long now.

Chelsea Place Hospice Mom

Thursday, Oct 18, 2018, 6:09 AM MDT

Home, Aurora, Colorado, United States

Mom Passed Away at 5:30 AM

Just heard from Chelsea Place: Mom passed away this morning. She must have died in her sleep. They checked on her this morning and she was gone.
Mark is flying in today at 11:30 am. He wanted to go straight to Chelsea Place to see Mom. Now it’s too late. Bob and Gai are also coming into town on Friday. They wanted to be here to remember Mom. I was hoping either Mark or Bob would be able to say their goodbyes to Mom, and that she’d hang on until Mark arrived. Not to be.
It’s a relief, knowing she’s not suffering anymore. I got to say my goodbyes to her yesterday, and Mark and Bob got to see her via FaceTime.